Surgery Success: Recovery is a Process

Surgery was successful. Dr. Chang was able to do what he wanted without removing her lens. He is concerned about the risk of her developing a cataract as a potential complication of surgery. If she does, he will remove the lens in a few weeks. We are praying that doesn’t happen! She has a bubble…

Demi is in surgery

I was informed late yesterday evening that Demi was bumped back a little. After speaking with her doctor there was an emergency surgery that pushed us back. I told Dr. Chang, “your hands are just warmed up now!” They took her back right at 8:45. She had a little oral sedative that didn’t really do…

Surgery #2: Praying for the Right Eye

The time has come and we are headed for surgery #2 to repair Demi’s retina in the right eye. The stakes are higher this time because she uses her right eye for most of her vision. However, the risk is lower this time because the right eye is much less complex than the left eye….

Sawyer’s 6th Birthday

Today is Sawyer‘s sixth birthday. That’s six years since she’s gained her wings. Six years since I’ve seen her face. Six years since I kissed her cheeks. And six years of memories made without her presence here on earth. Lastly, six years spent with Pops. Every parent knows that feeling when you see your first…

Pregnancy Loss: Memories Gained

Every year a memory pops up on Facebook. It’s the picture we took at our friends house right before Christmas. Every year I find I feel the same way. I love seeing the joy and excitement in our faces. I love the naivety and innocence about pregnancy that we possessed at that time. Even though…

Headed Home

Demi did so well! When they took her to the OR she never woke up from her nap. They were able to sedate her from her nap so no crying or fear for her! The doctor was able to see what he wanted. He said that her eyes are definitely better than when we started,…

Demi is in the OR

Demi is in the back with her team. They will put her to sleep then give her an IV. She was sleeping in our room before she left. So she actually didn’t know she left us. Oh and Brandon was allowed back with me! About an hour in to waiting, I found out he was…

Back in Houston: EUA on Monday

We are in Houston! Demi had to be here today to have a covid test done prior to her procedure on Monday. It was a drive through and as much as she didn’t care for it, she was over it pretty quickly. She did amazing on the ride here! We are just keeping her busy…

Pregnancy and Infant Loss Day: Sawyer Grace

Today is Pregnancy and Infant Loss Day. I feel like I can’t let the day pass without saying something. I always share in hope that I can help just one person with their grief. Today Sawyer would be right over 5 and a half years old. How is that? How does that much time pass?…

Our Miracle Girl: Pig Tails and Ice Cream

Demi has been enjoying the cooler days and missing Beau while he is at school! Our last visit with her retinal surgeon went well! He is happy with the health of her eyes at this point. Her surgical eye is still looking strong, but vision in that eye is hard to understand. The retina is…