Gods Presence: An Everlasting Gift

I had been so nervous leading in to Demi’s spinal tap. I have been a mess about it really. We woke up early this morning to a very loud boom… looked around couldn’t figure it out. Then Brandon went outside and found the cause of the awful wakeup call. A tree had fallen in to…

Strength: Mental Toughness is in My DNA

I have been told a lot lately about how strong I am, how strong Brandon and I are and all. I honestly don’t feel very strong all of the time. There are many, many moments when I’m weak and I’m pessimistic and I feel sorry for myself. I think how I react to those feelings…

Pending Diagnosis: Big Days Ahead

Demi’s doctors are working hard on finalizing a diagnosis for her. We are extremely close and believe we know exactly what caused her to have a visual impairment and some potential (because the neurological system isn’t cut and dry but more of a waiting game and I’m not speaking negative things about my child) abnormalities…

Momma Bear: Clawing My Way To Answers

We are still waiting on some results for Demi. We are meeting with different doctors in different areas of expertise to be sure no stone is left unturned. We met with a neurologist here in town and discussed her MRI and she would like to have a CT scan done Friday for Demi. Hopefully this…

The Waiting Game: Ugh

We are waiting on some lab results to rule out or in a few possibilities for Demi and then we see a neurologist here in town tomorrow to discuss her MRI a little further. This is just where we start. It’s possible we could get some answers this week but even with those answers, there…

Persevering: Only With Gods Help

We arrived home tonight around 9 or so. It was not the best ride home, between standstill traffic for at least an hour or so, to multiple nursing session stops and to being between a 3 year old that just wants some attention from mom and a baby that has been through a heck of…

Leaving St. Jude: Demi’s Update

We met with the oncologist today to discuss Demi’s MRI report. There’s really not much to share at this time. We are set to see a neurologist next week to look further in to everything. This will be a long process more than likely. We have definitely moved from an urgent/emergent situation to basically a…