Sassy Little Girl: Fierce Mommy

If you know much about me whether personally or from reading my blog, you will know I am extremely thorough. I’m certain to the point of annoyance too. I asked my mom the other day if I was hard to raise because I knew I was a sassy little thing! She said, “No. People would…

Fighting for Demi: Big Breakthrough

Chicago is home to a toxoplasmosis treatment center and some amazing doctors who have studied this illness for years and years. I reached out to the facility a few times for an appointment but I haven’t heard anything. I asked our infectious disease doctor about this at our second appointment (About 4 weeks ago) and…

“How are you doing?”: My Very Real Feelings

I have been asked so many times, “How are YOU?” Often I don’t know how to answer this. I’m nervous to answer honestly sometimes. Usually I’m a little bit of everything I think. I’ll dive in to this in a bit but let’s do a quick rewind of my past almost 32 years. My first…

“Glass Children”: Being Intentional

I have been working hard to get a schedule of some sort going for us and I feel like I’m finally getting somewhere. I’m a momma who likes her babies on a schedule. I guess it gives me a feeling of control, which I definitely desire. I also feel like Beau responds well to a…

Low Immune System: High Expectations

Every week since Demi started the Medication regimen for CT we have been drawing a CBC with differential (complete blood count to tell us specific information on how she is doing). We have been watching her neutrophil (The cells that fight off germs) count drop each week and even changing her medications to hopefully stop…

On To The Next Challenge: Surgery

It’s taken me a few days to process my own emotions about our appointment and Demi’s future. I have had to work very hard to “get my mind right.” I know some people may not understand that and may feel “oh just let yourself feel the way you want” and things of that nature. That’s…

Big Day: Big Prayers

Today is a big day. We meet with the eye surgeon from Houston to discuss Demi’s eyes. I’m not really sure what to expect to be honest. We have emailed a little back and forth but I’m still so unsure of what we can potentially offer us. So big prayers that either Demi’s vision is…