Night Before Surgery: Big Day Tomorrow

Our sweet girl is sleeping. We are almost ready for tomorrow. We are just now getting settled in our room. We were a little later leaving home today than planned. Demi did well on the drive. The last hour and a half or so was a little chaotic but we did it! She can’t have…

Remembering Sawyer Grace: Remembrance Day

Four and a half years ago…. hard to believe so much time has passed. That’s the day I held our first born in my arms as her soul was already in heaven. I don’t have much to say tonight and I’m writing this on a whim. Not one day passes that I don’t think of…

Demi’s Eye Surgery Goals: Specific Prayers

Let’s talk specific prayers for Demi. I think in order to explain that you first need to understand her eye and the point of the surgery. In Demi’s left eye there is scar tissue through the center of her eye (central vision) that connects to the front (lens) and the back (retina) of the eye….

Big Day Approaching: Big Prayers Going Up

Today was Demi’s pre-op appointment with her retinal surgeon. It was the usual.. 10.5 hours there and back, eye drops, ultrasound of the eyes and then the exam, with crying throughout. Sweet girl doesn’t cry for long though. She is so tough. The doctor said nothing has changed for her eyes and even though we…

I am for Her: She is for Me

I was talking with a friend the other day in depth about Demi and her needs. In that conversation a light bulb went off. I even told her how that conversation helped me realize so much about myself and Demi. I didn’t see it coming, it just happened. God puts people in your life for…

Gods Will: Defying Odds

Sometimes I wonder how Demi’s care would be handled if I sat back and waited for everything? I would like to assume her physicians would all do great but no way in crap I’ll ever wait on anyone. So I’ll continue to be the annoying mom! It is what it is! Demi’s labs are doing…

Mistakes Made: Giving Grace

Last week I missed Demi’s Neurologist appointment. It just simply slipped my mind the day of. I knew about it, it was on the calendar, I talked about it multiple times yet somehow I forgot!! I also missed one dose of medicine the following day as well as almost give Demi and injection on the…