One Year of Meds Completed

Today is the day!! We waited an entire year to finish Demi’s toxo medications!! I’m so thrilled. This medication journey started out so rough, had some very difficult challenges with her immune system and now we are finally done with the meds that have been causing that! Her labs were low again today but since…

Demi’s Update: Reaching a Finish Line

I think it’s time for a little update. Demi has been doing very well. We’ve had some issues with neutropenia (her immune system) again. It’s been a little up and down through all of this coronavirus mess. We were pretty used to staying home and away from people before a stay at home order was…

White Count Lows: Developmental Highs

Demi is soaring in all things in the development department and we are thrilled! It’s exactly what we expected, as I always say, but it is still so sweet to witness! We have been battling a low immune system (neutropenia) since March. This isn’t a big shocker but is still upsetting. She had been doing…

Taking Steps: Ready to Go

Demi is continuing to make developmental improvements that are so impressive and right on track. She makes us so proud! We have some work to do with her fine motor skills but nothing too concerning and definitely nothing she won’t be able to accomplish! We are still doing her therapy visits by using zoom or…

Big God: Big Accomplishment

God knows how to show his presence and He always makes it so clear. We are all in the midst of the corona mess. My family is very fortunate that Brandon can work from home and I am already home. With my last job, there is no doubt that I would be at an increased…

Big Big 1 Year Old: Big Accomplishments

1 year…. She is 1 whole year old! Sometimes it feels like it flew by and other times it feels like it’s been much longer. The things she has been through in one year just blow my mind. I think I’m mostly so happy to see where she is! I feel like she has become…

Mommy Mistakes: Balancing it All

I’m going to Nashville later this month with a few friends! We booked it a while back just to all have a minute for some good girl time with some retail therapy! Today I realized I booked my flights for the wrong dates…. so I corrected it of course. Everything is good and set to…

Sawyer Grace: Happy 5th Birthday

Grief is weird. It doesn’t make any sense. Sometimes February 28th, 2015 feels like yesterday and other days it feels like it’s been much longer. My mind is so busy with my two little earthly babies but somehow there isn’t a day that passes that I don’t think of my heavenly baby. Oh wow. When…

11 Months Old: So Strong, So Smart

Oh my! Our girl is 11 months old today! She is so big and so smart! We are so thrilled with her accomplishments! I would say impressed, however, she is doing exactly as we expected her to do- and that is amazing!! She is finding her own way to explore by sitting, laying down, getting…

My Girl: My Love

It’s been a little bit since my last update. That’s because things are fairly stable and that’s a good thing! Demi is doing incredibly well. She is literally surpassing every challenge given to her. She is doing all of the things we have expected of her. And that’s exactly why we say what we say…