“Glass Children”: Being Intentional

I have been working hard to get a schedule of some sort going for us and I feel like I’m finally getting somewhere. I’m a momma who likes her babies on a schedule. I guess it gives me a feeling of control, which I definitely desire. I also feel like Beau responds well to a…

Low Immune System: High Expectations

Every week since Demi started the Medication regimen for CT we have been drawing a CBC with differential (complete blood count to tell us specific information on how she is doing). We have been watching her neutrophil (The cells that fight off germs) count drop each week and even changing her medications to hopefully stop…

On To The Next Challenge: Surgery

It’s taken me a few days to process my own emotions about our appointment and Demi’s future. I have had to work very hard to “get my mind right.” I know some people may not understand that and may feel “oh just let yourself feel the way you want” and things of that nature. That’s…

Big Day: Big Prayers

Today is a big day. We meet with the eye surgeon from Houston to discuss Demi’s eyes. I’m not really sure what to expect to be honest. We have emailed a little back and forth but I’m still so unsure of what we can potentially offer us. So big prayers that either Demi’s vision is…

Wow: When God Shows Up

I am working through different emotions each day. Most of the time I’m optimistic and faithful but I am also sad, angry, upset, jealous, frustrated and overwhelmed. I’m sure you can imagine and I can elaborate on these feelings in the future some. Let’s talk about the sad for now. I was headed to bring…

Losing Control: Gaining Perspective

My personality has changed some over the years, but my need for structure and security has remained. I was extremely particular about things being in place growing up and everything being neat. I desired a routine and would even eat the same breakfast for months at a time. This goes as far back as I…

Diagnosis Made: God is the Ultimate Healer

We finally have a diagnosis. And before I say anything, please be use caution if you feel the need to share something off of your google search with me. At some point in my pregnancy I was exposed to a nasty parasite that left me without a single symptom but did not spare the same…