Hitting Milestones: Our Warrior

I finally feel like we have a grip on Demi’s labs and I’m extremely happy and grateful for her hematologist!! This week we gave her an injection Sunday, ran her labs Monday and then again Thursday prior to the next injection. This allowed us to see her high and low! Her high level was a…

Rollercoaster Labs: Hoping for a Smoother Ride

Demi has been able to restart her toxo meds and has been on them for one week now. On Tuesday we were told she had a significant drop in her neutrophils yet again. I’m a bit frustrated, concerned and still somehow optimistic. I have the utmost faith in Demi’s hematologist. I will continue giving Demi…

Big Update: Believing in Miracles

We received word last night that we would restart Demi’s medication as soon as possible. This is great news! I’m so happy! It was about 6pm when I received the email and it wasn’t until about 1:30 today that I got clarification that the prescription was sent to the pharmacy we are using. After I…

Rising Levels: Hallelujah

Praise Jesus! We have good news! Demi’s body has responded to her first injection on Friday! She got another injection just now. I gave it to her and Brandon helped. That was not very fun but she actually did well! She will get another injection on Wednesday and then repeat labs on Thursday! If her…

Update On Our Girl: Demi Grace

I feel like we are going in the right direction and I’m so grateful. We met with Demi’s hematologist for the first time today and in one visit, the doctor was able to make this momma so happy with her plan! That’s a great feeling and I think somewhat hard to accomplish concerning my feelings…

Surrendering Control: Trusting His Plan

We have been waiting for Demi’s labs to increase to resume her medication for nearly 4 weeks. To say I’m frustrated is the nicest way to put this. After contacting the physician in Chicago, we were leaning towards the idea that the medication was causing Demi’s labs to drop. And specially how the medication was…

Denial: Or Optimism and Faith

Brandon and I have remained so optimistic in reference to Demi’s needs and future for the most part. Obviously there are many moments when I feel very overwhelmed and scared concerning all of this, but I truly hang on to the fact that nothing is impossible. The eye doctor told us that she would likely…