It may sound strange but today is one of my favorite days of the year. It’s a day totally dedicated to our first born, our little baby girl, our angel. That means we say her name a million times and the most fun part for my kids – we bake her a birthday cake! I…

Demi has far exceeded my expectations! She is much happier and more tolerant than I expected! Sleep isn’t great but it’s not bad either. She has been to basketball games, baseball practice and games, lunch with friends and on all sorts of errands with me! She has her moments for sure and has become a…

Demi had her hip surgery Friday! It was a little longer than expected. She ended up getting a little blood transfusion (1 unit) but still doing well. We waited 2 extra hours for the surgeon to start and then 6 more hours before we saw her. It was a long day but not as long…

We left home yesterday afternoon to head to Demi’s retina checkup! We stopped at L’auberge in Lake Charles and the kids loved it! Brandon offered to teach Beau blackjack, we ate lucky dogs – IYKYK, Beau threw his football all over that hotel and Demi filled up on French fries and slept past 7am! Demi…

It has been a while since we have done an update on Demi. That is simply because she has been doing so well that there really has been nothing to say! We are so grateful for this! In the past month or so we have noticed Demi was keeping her left knee bent consistently. A…

We had a great time with Beau and Demi baking big sisters birthday cake!! Both kids were able to help prepare and decorate the cake and then they totally devoured their share!! We love this tradition we started and we will always enjoy today in her honor. Happy 7th Birthday to our Angel baby, Sawyer…

Each year as February rolls around in Louisiana, everyone is excited for all of the usual Mardi Gras traditions. Some buy dresses and plan their night for the ball they will attend. Some make arrangements and purchase their throws for the parade they will ride in. Finally, some just head to the best bakery they…

Demi’s update with her retinal surgeon went wonderfully well. He had nothing to report and that is what we expected. Her retina is stable as is. He bumped our visits back to every 6 months. We will see Demi’s ophthalmologist every 6 months as well. so she will end up seeing one of them every…

It’s been a little while since I made a Demi update! Recently I have witnessed a few friends walk through some really difficult time with their childrens’ health and it just reminds me of how thankful we are that God delivered on everything we prayed for. I have been praying so hard for these children…

I don’t think I can say enough GREAT things about today! OLOL children’s surgery/pre op/post op/child life team is AMAZING! This was Demi’s 6th time under anesthesia and this was by far our best experience! They updated us multiple time during her very quick procedure and were just overly considerate and kind. Demis post op…