11 Months Old: So Strong, So Smart

Oh my! Our girl is 11 months old today! She is so big and so smart! We are so thrilled with her accomplishments! I would say impressed, however, she is doing exactly as we expected her to do- and that is amazing!! She is finding her own way to explore by sitting, laying down, getting…

My Girl: My Love

It’s been a little bit since my last update. That’s because things are fairly stable and that’s a good thing! Demi is doing incredibly well. She is literally surpassing every challenge given to her. She is doing all of the things we have expected of her. And that’s exactly why we say what we say…

Gods Presence: My Little Wonder Woman

Today is a day that I have felt so much of Gods presence in my life. Yesterday we were told “tomorrow is the day for glasses!” We had been told this before and it didn’t work out so I was apprehensive but still excited! Around noon I received a phone call from my grandpa telling…

It’s A Matter of Perspective: How Do You Choose To See It?

We ordered Demi’s glasses over a month ago. Long story short.. unbeknownst to me, they experienced some ordering issues that caused delays. Then today the glasses were in Baton Rouge at one location and ended up lost in transit to the location that we ordered them from. They have ordered another pair and now we…

God is Doing Some Work: Continuing to Pray

Demi is doing so well! She is saying dada! She is reaching for toys and things she wants! She is feeding herself with her hands even a little with a spoon when placed in her hand! She is tolerating all those of foods! She is able to hold herself well on all 4s, which means…

New Med Progress: Hopeful to Stop Shots Next

We are 5 days in on Demi’s seizure medicine. Some of the side effects are that you can see some behavioral changes in the first two weeks. So far, it’s not too bad, but I have noticed her to be a little more needy. Demi is still off of her shots for her immune system…

Changes for Demi: Nothing God Can’t Handle

Demi’s EEG last week came back without any seizure activity but there was a spot that is concerning for the potential for seizures. We were ok with these results because we have already been informed she is at risk for seizures months back. Her glasses (frames only) came in today and we sent them off…