New Med Progress: Hopeful to Stop Shots Next

We are 5 days in on Demi’s seizure medicine. Some of the side effects are that you can see some behavioral changes in the first two weeks. So far, it’s not too bad, but I have noticed her to be a little more needy. Demi is still off of her shots for her immune system…

Changes for Demi: Nothing God Can’t Handle

Demi’s EEG last week came back without any seizure activity but there was a spot that is concerning for the potential for seizures. We were ok with these results because we have already been informed she is at risk for seizures months back. Her glasses (frames only) came in today and we sent them off…

Look What’s Coming: Big News

I have been a little nervous walking in to these last two days (the last two tests and a eye doc appointment). I wish I had just expected everything to be smooth but anytime you have to sleep deprive an 8 month old or any kid, I would imagine it’s hard to just have the…

One Test Down: Two To Go

Demi passed her hearing test with flying colors!! Praise God! We did not sleep deprive her as much as they wanted because it was nearly impossible, so we are grateful that everything went perfectly and now we don’t have to repeat it!! She is doing so well! We are so proud! Toxoplasmosis can cause some…

Believing in His Work: He Will Provide

When I say we have had a rough 4 weeks with Demi, I really mean it. She has been healthy and I’m so grateful for that. I have been thanking God for her health every single day because I can’t begin to imagine the struggle that parents feel through that. Recap of fears from my…

Fear and Concerns: Faith and Inspiration

Yesterday we made an early (due to a schedule conflict) trip to see Demi’s eye surgeon. He said that she is healing appropriately and her retina is settling where it should be. We are so happy to hear this. She will be under his close watch for sometime because her retina will remain at risk…

No New Projects: Just Healing

A few weeks ago, our OT assessed that Demi’s anterior fontanel (her soft spot in the front of her head) had closed a little early. I was immediately concerned about this and for good reason. If the plates in the skull close prematurely, the brains growth can be limited and it can cause other issues…