Our Gymnast: Wild Girl

Demi started gymnastics today! It took her a minute to warm up but she loved it!! I can’t wait for her to go back again!! She loved the trampoline just like she does at home! I really think this is going to be so much fun for her! We are headed to Beaumont tomorrow to…

Little Gymnast: Flipping Wild

We have been busy but happy! We are grateful we are all healthy and our home and community escaped the wrath of hurricane Laura. I have been and will continue to pray for those who have been affected. Demi has been experiencing some attachment difficulties lately in regards to me. Who can blame her? She…

Goodbye St. Jude: Neutropenia No More

Demi has been doing amazing since coming off of her toxo medication! I was hopeful and expected the best but still a little scared here and there. I always try to think positive and expect the best because that’s exactly what I was always told to do by my dad. It can be hard to…

Risk Vs Benefit: Right Eye

Demi has been doing well since coming off of her toxo medication! Her immune system is rebounding on its own, slowly, but in the right direction! We haven’t given her any shots since stopping toxo meds. She hasn’t been anemic either which is also great! She’s so happy and literally all over the place! She…

One Year of Meds Completed

Today is the day!! We waited an entire year to finish Demi’s toxo medications!! I’m so thrilled. This medication journey started out so rough, had some very difficult challenges with her immune system and now we are finally done with the meds that have been causing that! Her labs were low again today but since…

Demi’s Update: Reaching a Finish Line

I think it’s time for a little update. Demi has been doing very well. We’ve had some issues with neutropenia (her immune system) again. It’s been a little up and down through all of this coronavirus mess. We were pretty used to staying home and away from people before a stay at home order was…

White Count Lows: Developmental Highs

Demi is soaring in all things in the development department and we are thrilled! It’s exactly what we expected, as I always say, but it is still so sweet to witness! We have been battling a low immune system (neutropenia) since March. This isn’t a big shocker but is still upsetting. She had been doing…

Taking Steps: Ready to Go

Demi is continuing to make developmental improvements that are so impressive and right on track. She makes us so proud! We have some work to do with her fine motor skills but nothing too concerning and definitely nothing she won’t be able to accomplish! We are still doing her therapy visits by using zoom or…

Big God: Big Accomplishment

God knows how to show his presence and He always makes it so clear. We are all in the midst of the corona mess. My family is very fortunate that Brandon can work from home and I am already home. With my last job, there is no doubt that I would be at an increased…

Big Big 1 Year Old: Big Accomplishments

1 year…. She is 1 whole year old! Sometimes it feels like it flew by and other times it feels like it’s been much longer. The things she has been through in one year just blow my mind. I think I’m mostly so happy to see where she is! I feel like she has become…