We really think today is our last day here since it seems as though Demi is cancer free. We will be getting her ultrasound and MRI reports this am. Obviously the doctors here are incredible but they are oncologists so we may have to meet with a neurologist before we really understand what everything is…
Author: godsplanunraveling
My name is Jordyn and I have decided to share our story of pregnancy loss and life after loss, including our walk through pregnancy after loss and raising children after loss. Also, as of the past few years I talk a lot about Demi, our daughter, through her journey with toxoplasmosis. I think every aspect of our journey is a testimate to God’s plan for us. I hope you enjoy the blog!!
St. Jude: Day 2, Afternoon
Demi is now under anesthesia for her MRI. The scan itself is 1 hour and 10 minutes. Brandon went back with her to be with her until she was asleep. She did wonderful he said. We are waiting for her to be done. Then she will have a 6 hour recovery due to her age….
St. Jude: Day 2, mid day
We are currently waiting for Demi to have an MRI of her brain and eyes while sedated..again. Obviously anesthesia two days in a row is a little concerning but I’m currently waiting to see the anesthesia team for evaluation before the MRI to be sure they are comfortable with it. It seems like it will…
The Ups and Downs: Raw Emotion
Since being here I feel like it’s just a roller coaster of emotions. Brandon and I have been through some very difficult challenges but obviously this is seeming to be extremely difficult. I have never been in a place where I feel anger like I do on and off through this. Seems very unfair really….
St. Jude: Day 1, Evening
Demi does not have any form of eye cancer. That’s great news. But that leaves so many questions, possibilities. I’m keeping it simple, because I don’t have answers. She is recovering well from her anesthesia. Tomorrow she will have an MRI done. We hope we can get something from that. It’s looking like we will…
St. Jude: Day 1, Mid Day
We met with Demi’s oncology nurse practitioner and nurse. We came here concerned about her vision but didn’t really think much about the “C” word. I know that may sound naive but we were just thrown in to this so fast that all we could think about was her vision. Here we are just overwhelmed…
St Jude: Day 1, Morning
8:30 am Wow. This day is more than I could have imagined. It’s jam packed with appointment after appointment and Demi can’t have breast milk after this point. I woke up ready to “top her off” and she really wasn’t interested. So now I’m all in a tizzy about the hours to come and her…
Blind Faith: Praying for Miracles
Our precious baby girl was born 11 weeks ago and we have been so smitten. I noticed right away that she wasn’t opening her eyes much. I mentioned it to her doctor and a few friends and family. I decided I needed to just give her time since she was born a little early. In…
3 Year Old Melt Downs: Loving Him Through It
Tonight while preparing for bed, Beau was having a 3 yr old melt down about his leg and hand hurting. He often gets growing pains so it’s not totally abnormal. He wanted medicine. I was holding Demi, asleep, all while he was carrying on. Of course all things crossed my mind.. is he really hurting?…
Hopes and Dreams: Finding Balance in Passing Them On
As our sweet angels birthday approaches, I have been experiencing mixed emotions every single day. I think there are so many reasons as to why I feel that way, but I know I can’t put each one of them into words and I likely can’t even process it all if I tried. I have to…
God’s Plan Unraveling 