Every parent knows the sound of that joyous cry and that feeling when they lay eyes on their first born child. What every parent doesn’t know is the painful silence of the birth of a baby whose soul has already entered the gates of heaven. This silence is filled with a feeling of finality that…

Today is our last step in the hip dysplasia process (well minus when he removes the pins in about 2 years)! When Demi’s right hip was fixed, the surgeon used some of her femur (large leg bone) to repair the hip. This left Demi with a slight leg length difference. We have opted to encourage…

Demi is brace free and she hit the ground running, literally. Surprised? I’m sure you aren’t! We took her to Texas and back yesterday for her Retina check up! Both retina are still stable and holding strong! I am so very happy we chose to repair her retinal detachments when we did! Demi is back…

Demi is home and we are trying to keep her as happy as possible! She is doing well and happy to be home! Thank you all for your prayers! Four weeks in the brace will go quickly!

She did great! She is actually resting at the moment and we are thrilled. Praying this continues through the night! We will go home tomorrow! Making sure we keep her pain level under control so she can continue to rest!

“We are going to ROCK this surgery!” She was ready for today! We have been preparing for this and feel very confident about what’s to come! Demi is having her left hip fixed to be a bit more stable and having the plate and screws removed from her right femur! We have been told to…

It’s been 4 years since we took off to Memphis to rule out cancer in Demis eyes and begin the process of a diagnosis. It’s been 4 years since we knew Demi’s vision was limited. And it’s been 4 years since we decided her life may have challenges but she would accomplish whatever her little…

It may sound strange but today is one of my favorite days of the year. It’s a day totally dedicated to our first born, our little baby girl, our angel. That means we say her name a million times and the most fun part for my kids – we bake her a birthday cake! I…

Demi has far exceeded my expectations! She is much happier and more tolerant than I expected! Sleep isn’t great but it’s not bad either. She has been to basketball games, baseball practice and games, lunch with friends and on all sorts of errands with me! She has her moments for sure and has become a…

Demi had her hip surgery Friday! It was a little longer than expected. She ended up getting a little blood transfusion (1 unit) but still doing well. We waited 2 extra hours for the surgeon to start and then 6 more hours before we saw her. It was a long day but not as long…